Saturday, January 17, 2009

Miss me?

Guess where I am. No Sarah you can't guess you have the answer.

I'll give you a hint. It involved white coats, airplane rides, and more white coats.

Oh yeah we're in San Fransisco. I'm at Cal Pacific getting a much needed tune up.

The lungs are in bad shape. The heaviness I've felt for ages in my left lung are cysts. Those may never gop away and they harbor infections in there. When the infection in my lungs get bad those swell and the sensation I feel is heaviness. I do have damage in both lower lobes that may be irreversible but all those things things I've said I KNEW, I did know. The damage is from long term infection being harbored in my lungs for years.

Best case is that we can kick the infection and that will reduce the swelling that is making me unable to breathe. I will gain back my lung function and I will go along like a GOOD girl and keep in touch and working with a CF doctors and you all can read my ramblings for lots longer. You know without lifetime o2.

I do have to say thanks to the 4 of you that have stuck through all my rambling emotional distress. When you are surrounded my doctors that are a bundle of negative you tend to drag down with them. The doctors here aren't like that, and while this is major, everyone is totally positive.

So ready to get scared.
My lung capacity as of today is .89L.
HEY WHAT?! That's UP from yesterday, which was .75L. Normal for my size is 3.0L "Normal" for me is about 2.0L. So I'm at like 1/4 of my normal.

So here is where I am. Unfortunately my computer will leave with my husband tomorrow. So no regular posts, sorry. I will probably be here for at least one week more than likely 2.

Please keep me in your thoughts. I'm thinking I'm doing ok. I'm totally feeling better than how I felt before I got here.

Oh and I still hate to fly. EWW..... That flight was great they say, flat even. Pfftt... felt horrible to me. Of Course I was strapped a gurney.


Jen said...

Keeping you in my thoughts and prayers. HUGS

karine said...

thinking of you and hoping there is a speedy recovery and the heaviness leaves soon and you can go back to your life.